Home Sweet Home

While it's had some challenges, being home has been wonderful for all of us. Mya is making small improvements daily; she's sitting like a champ now, working on getting her crawling strength back and has tried to pull herself up to the couch a few times (assisted, of course). Her voice is even coming back very, very slightly. She's even doing a few things that she didn't previously; identifying her eyes, stacking her tower of rings when previously she'd only take them apart, and putting balls into a toy rather than just watching us play with them. We are enjoying every minute she's awake. She's only sleeping 4-6 hours during the day now, when a week ago she was only awake 4 hours. Such a wonderful change. Her sweet little personality is clearly back to "normal."

A few of the stressful times we've encountered:

Last night I was cooking dinner and it was time for Mya's feeding and medicine. Rob noticed that her feeding tube was dislodged. We decided we had to put in a new one. This is nothing short of a very stressful process. Rob tried to keep her pinned down (not easy I might add) while I threaded the tube down her nose to her throat. We were worried that it wasn't in the right spot; we had to do the "tests" several times to make sure it was in her little stomach. Needless to say, I got more and more stressed out about it as we kept getting negative results to verify its location. Time was ticking and she was freaking out. Another deep breath needed. Finally we were able to relax enough to get everything done appropriately. In the mean time, dinner was on the stove burning. Soon after that we decided that she hadn't had a BM in a few days, so it was time. Enter suppository. Yes, Rob allowed me to do the dirty work on this one. This stuff wasn't in the pregnancy manual I read... no one told me I'd have to do this as a parent! However, we are so thrilled to be where we are, I'll do whatever it takes to get this little one to the place she needs to be. Just don't call me when your kid needs a suppository. I hang up the nursing hat when she's better.

Look! A curl! Her hair grew a lot during the past month!