Thursday, October 29, 2009

Happy Halloween!
We have a busy little bee this year, she's crusin like a champ! We decided to take some pictures between changing her tube, so nice to have a break from the tape on her face!

Friday, October 23, 2009

Today we went back to have a check up on Mya's heart. This was a pivotal visit, as last time (over a month ago) our Cardiologist was concerned that the left side of her heart was still a bit enlarged and hadn't changed as much as is should have post surgery. At the time, Mya was still on pain medications, so we decided to wait another visit to see if any progress would be made. We were a little nervous going in today, as it could have meant more medication and more to deal with in a negative light. However, after an echocardiogram and xray, Mya's heart seems to be slightly improving. We are so thankful! Her xray also showed less fluid on her lungs, so we're able to take her off the current diaherretic medication she's been on. This means that we are finally off all meds, except the asprin she'll be taking for the rest of her life. They are also trying to help get her off the feeding tube, we're going to start decrease the water through the tube to see if she'll drink more thickened milk on her own. That would be so wonderful! We will all look forward to eliminating that nasty tube. Here is a picture of Mya and our Cardiologist. The whole team has become so important to our family, we're so thankful for their help! Our friend Jen has been watching Mya for the past few weeks. She's been great to take care of her, feeding tube and all. Mya really has a good time playing there, she really likes Morgan who is four, a sweet little friend!

Friday, October 16, 2009

Big News!

Mya is walking! She's pretty tenative, but she can do it! At age 14.5months, we are now in trouble with a fully mobile little miracle girl. We are so blessed that she's motoring around like nothing ever happened to her little body!

Sunday, October 11, 2009

Sunday, October 04, 2009

Visiting the Pumpkin Patch
We enjoyed time with Uncle Steve & Aunt Michelle this weekend, and took a trip to the pumpkin patch. Nothing like pumpkins, corn on the cob and fresh apple cider! Yum! Thursday Rob took Mya in for another swallow test. She is much better, but we've yet to hear the diagnosis from our doctor. We're hoping to get the tube out, but are guessing that we'll have it in for another month. Kind of a bummer, but our Pediatrician has also recommended that we don't put her back into daycare until she is vaccinated for the H1N1 flu, which is TBD on the release. So, we have 2 reasons now not to be around a lot of kids with germs, so our friend Jen will be watching her, she's such a saving grace!

Our grown up girl!