Sunday, August 09, 2009

Slow & Steady
There have been few changes for Mya. She's finally back to being warm, they've been cooling her a bit more post surgery. We're hoping for her to be completely off the paralytic today, which will help her circulation. She'll start to move a bit more as well. They did another echo cardiogram yesterday morning and it wasn't totally what they were expecting; as it shows the left ventricle not working as hard as it normally should. They've decided that her little heart has had to work harder with the paralytic (the reverse effect of it's intention), having to force more blood into constricted capillaries; so now it's just slowed down since it's a bit stressed. This should get better in the next day. They probably won't do another echo to double check until tomorrow. The nutritionist just stopped by to check on her status. Mya's currently only "eating" via IV. Hopefully in the next day (before she's too awake), they'll give her a feeding tube and start putting some food in her tummy. This can't happen until she's got better circulation- obviously many things are hinging on getting off of the paralytic. I just found out that both patients next to us have had heart transplants. I'm so thankful we're not in their shoes! One boy is about 16ish and the other is a little baby girl, not more than 2 months old. It's such an amazing place, with big stuff happening all around us. I have to say that I'll stick to working with clothes! It's not nearly the same stress!

We want to thank you for you many prayers & well wishes! We know they've been helping; I am so thankful to be where we are, even if she's still not awake. Amber & Rick- thank you so much for coordinating the Dinners Ready meals for us, they'll come in so handy! A huge thank you to those of you who contributed. Jen & Creekside Moms the bag of food & snacks has continued to be really great- thank you! Lani and Mia- we love the little book and treats; we've already read it to Mya a few times! We have been constantly humbled by such generosity from everyone around us.

1 comment:

Domrese Family Blog said...

So glad to be able to help in any way possible. Glad to hear that you're getting off the parlytic and will be able to see more from that little girl! I know you're anxious to see that personality! Will continue praying for your family.