Thursday, August 06, 2009

The big decision has been made! Mya's test has gone very well by temporarily taking her off of the ECMO machine, her CT scan didn't show any negative signs, and when she woke up, she was moving very normally & she opened her eyes a couple of times. While these are all great steps, it's still not 100% that she didn't suffer any brain damage from her heart failure...but all are huge positives. The amount of brain damage can't be understood until she wakes up completely, however we are very hopeful and the chances are high that she doesn't have any. Weighing all of the options, our surgeon (who has been communicating with us regularly) has said that we can do surgery tomorrow. The unknown risk is that her current level of brain damage (if there is any) could be enhanced by putting her on the heart/lung machine which is required for her surgery. However, the other option of getting better and going home just to come back in a couple of months to do the surgery isn't going without risk either. She still would need to do the heart surgery at some point, and to come back for that would not only be emotionally difficult, but we don't know for sure if she'd have the same issue. So, we have collectively landed on the following plan: 1. Surgery has been scheduled for tomorrow afternoon (anytime from 1:00-2:00ish). 2. She's going to stay on her current anesthesia and ECMO until surgery tomorrow, as it will help with the surgery at this point due to current incisions etc. 3. Surgery will be performed as originally planned; should be 45ish mins to repair her VSD and then will have a 1 hour clean up/recover time prior to getting to see her again. 4. They've given us the rough estimate of being in the hospital probably another 7-10 days since she's got a lot to recover from. Please pray for: NO BRAIN DAMAGE and for an uneventful surgery! We still have reservations about it, but are very optimistic. All of the doctors and surgeons have a more personal connection to Mya now, and we KNOW that they are doing all they can to get her thru this with no issues. THANK YOU!!!

13 comments:

Michelle said...

I'm so glad to hear this positive news. Our little girl is a fighter for sure!

Anna said...

I am very glad to hear such positive news and that Mya is doing so well all things considered!

Domrese Family Blog said...

We will keep praying that tomorrow goes well. Hopefully in 24 hours time you'll be through the worst of it and on to recovery and headed home shortly.

Kristie said...

Great news! Your church family loves and is supporting you in prayer!

Sarah K said...

That is wonderful news Julie! I will be thinking about you guys and praying for Mya all day tomorrow! She sounds like a little fighter, that's for sure.
Sending our love,
The Krekow Family

Carissalayla said...

I am so glad that things are coming around...continued prayers for Mya and the doctors/nurses/mom & dad. God is good!

Amanda said...

Praying for Mya, the Surgeons, you all, and the surgery tomorrow... God is good.

Ingrid said...

I will be praying for Mya tomorrow. When our children are sick, any little good news ends up being big good news.

SUSAN said...

Hi Tiegs,

You are in our thoughts and prayers. I know God is sustaining you. May you experience His love and peace. You are a beautiful family. In quietness and trust is your strength.
Lovingly,
Susan and John B
(Justin,Carissa,& Trevor's Mom)

SUSAN said...

I LIFT UP MY EYES TO THE HILLS-WHERE DOES MY HELP COME FROM? MY HELP COMES FROM THE LORD, THE MAKER OF HEAVEN AND EARTH.
PSALMS 121:1-2

This verse always encourages me. Nothing is impossible with God. He is sovereign and his love endures forever.
Lovingly,
Susan and John B

clonorati1161 said...

we are good friends to Bob and Joan Burns ... We are praying for Mya the surgeons and hospital staff and you. Always in prayer

The Onorati's

Krisy said...

I am Praying Julie! I am, my kids are, our small group is too.

Love to you, your husband, and Mya.

Sue - Mukilteo said...

Rob and Julie -
I am so glad Mya seems to be doing better, Children's is a remarkable place! I hope the surgery this afternoon goes well.
Sue - Mukilteo