Last week we went back to the cardiologist to have another echo-cardiogram of Mya's heart. The bummer is that the left side of her heart is the same size as it was when we were discharged from the hospital 2.5 weeks ago, still a little enlarged. That means that either it hasn't had enough time to heal or that the 2nd surgery didn't completely do the trick, and her heart still isn't functioning at 100% (although much better than when we started with). The left side is not working as efficiently as the right side, and blood is "backed up," thus becoming larger. At this time, we'll continue to have her monitored and pray that it's just time that is needed for healing. There is a medication that she can take to help heal the situation, but they didn't give it to us yet since she still isn't off her narcotics that we're still weaning from (we have a few more weeks of them). Our cardiologist is still hopeful that it can heal on it's own. The good news is that we know what to look for; the bad news is that there is the possibility of more "fixing" down the road, worst case scenario is that she'd need another surgery. If her body can hold out for a few years, it would be behoove her to be bigger, as more options are available. So we're a little disappointed, but are glad to know the reality of her status.
On a lighter note, Mya is doing great from our perspective. Her little voice is almost completely back, and we're thinking she's going to be walking in the next week. She's taken a few steps on her own already and stands alone for long periods of time. She isn't needing any physical/occupational therapy (she didn't qualify), as she's progressing very normally. THANK GOD!!! Unfortunately we have to wait 3 more weeks to possibly get her tube out, they couldn't schedule a test sooner.
Thanks to many friends and Rob's co-workers, tonight we went to Dinner's Ready where we were able to make a bunch of meals for our freezer- so great! We had a really good time putting them together (Mya liked it too!), the owner of the shop even knew Mya's story before we got there. This situation has affected so many different people, it's amazing how our little sweetie has touched so many people. Thank you so much to the many contributors, this is such a blessing for us! One of the hardest things is getting back to "normal" life, and having food ready to cook is perfect!