Friday, September 25, 2009

We're not done yet...

Last week we went back to the cardiologist to have another echo-cardiogram of Mya's heart. The bummer is that the left side of her heart is the same size as it was when we were discharged from the hospital 2.5 weeks ago, still a little enlarged. That means that either it hasn't had enough time to heal or that the 2nd surgery didn't completely do the trick, and her heart still isn't functioning at 100% (although much better than when we started with). The left side is not working as efficiently as the right side, and blood is "backed up," thus becoming larger. At this time, we'll continue to have her monitored and pray that it's just time that is needed for healing. There is a medication that she can take to help heal the situation, but they didn't give it to us yet since she still isn't off her narcotics that we're still weaning from (we have a few more weeks of them). Our cardiologist is still hopeful that it can heal on it's own. The good news is that we know what to look for; the bad news is that there is the possibility of more "fixing" down the road, worst case scenario is that she'd need another surgery. If her body can hold out for a few years, it would be behoove her to be bigger, as more options are available. So we're a little disappointed, but are glad to know the reality of her status.

On a lighter note, Mya is doing great from our perspective. Her little voice is almost completely back, and we're thinking she's going to be walking in the next week. She's taken a few steps on her own already and stands alone for long periods of time. She isn't needing any physical/occupational therapy (she didn't qualify), as she's progressing very normally. THANK GOD!!! Unfortunately we have to wait 3 more weeks to possibly get her tube out, they couldn't schedule a test sooner.

Thanks to many friends and Rob's co-workers, tonight we went to Dinner's Ready where we were able to make a bunch of meals for our freezer- so great! We had a really good time putting them together (Mya liked it too!), the owner of the shop even knew Mya's story before we got there. This situation has affected so many different people, it's amazing how our little sweetie has touched so many people. Thank you so much to the many contributors, this is such a blessing for us! One of the hardest things is getting back to "normal" life, and having food ready to cook is perfect!

Our little stinker is growing up so fast! She has figured out a few signs that helps us understand her, it's great. We enjoy every second with her, she's so amazing!

video

5 comments:

Carissalayla said...

thanks for the update, I love seeing pictures of sweet Mya!

Hilty Sprouts! said...

That must have been hard to hear. I will pray that she just needs time to heal.

It looks like you had so much fun at Dinner's Ready! What a great gift!

Domrese Family Blog said...

So glad you are using those meals and putting them to good use! You deserve it! Will keep Mya in our prayers. Thanks for all the updates!

Kristie said...

We'll keep you in our prayers. She may not be out of the woods, but God is still in control! Deep breaths and big hugs!

jaime.ledger said...

We're praying for a full recovery and soon. hopefully time is all she needs! I'm glad to see you were able to go to Dinner's Ready! that is a great place for a busy mommy!!! Thanks for the update!