Friday, September 04, 2009

Swallow Test
Yesterday we went to Children's for Mya's swallow test & went back today for the information to be translated for us. While she didn't "ace" it, she is able to do solids and liquid to a "honey" consistency. That means we have the tube for probably 1-2 more months, since she probably won't get enough fluids drinking honey out of a sippy cup. Disappointing to have the tube, but I'm determined to do as much for her as we can to get her off of it by the end of the month. I am encouraged that she can eat solid foods, I couldn't imagine another 2 months of baby food alone, she's definitely over that! I'm planning to do my own formula weaning schedule- they essentially gave me the green light to do what I want to do. I've learned pretty quickly that the Children's hospital staff is really good at dealing with inpatient care, but isn't suited for the follow up information. All of our appointments are with very smart people, but their job scope is so narrow, they can't cover all of the decisions, and often refer me to others, sending me in circles. It's been a bit frustrating, but after our appointment today, I'm feeling more empowered to make choices for Mya myself. So, we're going to try to get her off as much formula as we can and transition her to normal meals. This will be slow, but I think we can get her back to a normal schedule by the end of the month. The healing of her throat is obviously up to God... we'll see if it happens by October 4th when we're hoping for her to go back to daycare. Our leave time is drying up, and we need to be back to normal as soon as possible.


Hilty Sprouts! said...

I'll be praying!

jaime.ledger said...

Julie, I am glad to hear that swallow test went okay. Isn't it interesting to watch that? that is the same test we had on Brody. I'm confident in your ability to work through the problems you are facing and get through this faster than they think you will! We're praying for you!